It's been 5 years since my son has been battling seizures and 3 years since we started seeing a neurologist. Today was another appointment with the neuro, and so far, it's been good progress. I think the best thing that has happened to me regarding my child's state of health was the day a visiting doctor came and saw his condition at the hospital and immediately requested that the hospital transfer us to the teaching hospital at once, where a professional (a neurologist) can handle his case instead of all the trial and error they have been doing with his health.
Before we started seeing a neurologist for Chisom's health challenge, he usually had seizures almost monthly, and gradually his eyes got affected and his level of intelligence was reduced as well. I have seen some children who got paralyzed due to a seizure attack. I have seen some children whose physical appearance turned into something else due to this same health challenge. At first, I thought medical glasses could correct my son's eye defect, but I was wrong. He has used the glasses for more than 3 years, yet I haven't seen any change. That's not actually my big worry, as he still sees with his eyes. My major concern is to put an end to this sickness.
As a mom, it's been one aspect I haven't found so easy to cope with. I have been dealing with all the other duties that come with motherhood, but when it comes to this kind of health challenge, I see myself as being faint-hearted. The very day we visited the neurologist, the first question he asked me was, What took me a long time to seek a professional for an issue related to the brain? Truth be told, I have been seeing a pediatrician since day one, and I thought I did the right thing. At least, they should have told me that it's best to see a neurologist, but they didn't. Each time the seizure comes, they treat him, and he will regain consciousness. I had this conviction that he would overcome the issue as he continued to grow until I met the Neuro, who requested a brain scan and took up the case from the diagnosis.
The whole experience has been a life lesson that I can't forget in a hurry. Nothing beats seeing the right doctor for a particular case. I am glad that we are really progressing with his health. After today's diagnosis, the neurologist said he is looking at him stopping his routine drugs in six months, as he has shown stability and improvement for a long time. There's a particular anticonvulsant he has been taking since two years ago, and hopefully he will stop taking the drugs soon.
Today, I spent exactly 11 hours on the road just to see the neurologist. It's a hospital very far from where I live, but when health is involved, mothers can take different sacrifices and stress to see that the well-being of their children is secured!
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